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John
Stone, M.D.
Professor of Internal Medicine
Former Dean of Admissions
School of Medicine
Emory University
"Patients
as Teachers"
The
first story I heard in medicine was from a dead man. It was in St.
Louis at Washington University School of Medicine. I came into the
medical school off of Euclid Avenue, and then up the stairs through
a veritable tunnel of displayed cases and into the large anatomy
lab. At that point in anatomy we had two students per cadaver, and
we spent months studying that cadaver. During that time--and particularly
when we opened the chest-- the cadaver, a husky man, taught me very
much. Dr. Charles came around and said, "this is the nerve that
gives rise to tictolaroo." And, I thought to myself, that is something
that I will have to read about. If I have a daughter, I might just
call her tictolaroo. It is such a pretty word instead of spatial
nerve spasms.
When
we entered the chest, the man taught us something about his life.
That experience became one of the early poems of mine that was published.
I want to read it to you now. It is called Cadaver, and there
is a little epigram at the top, which I wrote:
The
initial lesion of syphilis may result over the years in a gradual
weakening and dilatation--aneurysm--of the aorta. This aneurysm
may ultimately rupture and lead to death of the patient.
Fitting
the labels
in
our books
to
our tense tendons
slipping
in their sheathes
we
memorized the body
and
the word
stripped
the toughened skin
from
the stringy nerve
the
giving muscle
Ribs
sprang like gates.
In
the chest
like
archaeologists
we
found it:
clotted,
swollen
aneurysmal
sign
of an old sin--
the
silent lust
that
had buried itself
in
the years
growing
in
the hollow of his chest
still
rounded by her arms
clinging
belly
to belly
years
beyond that first seed
to
the rigid final fact
of
a body.
I never
forgot that story, of course. It was such a dramatic one. Not only
was it my first encounter with the aorta, but with an aorta that
was diseased by syphilis. I was so taken with this encounter that
years later, when I was riding in the country of hearts, I put it
in prose--that experience.
The
body on which we worked was that of a man, perhaps of fifty years
old. He was muscular--a laborer I imagined. His body was like a
textbook--perfect, flawless. As freshman medical students, we had
no idea why such a perfect body might have died, until we opened
the chest. His heart, like his other muscles, was heavy with the
weight of life. But the most striking abnormality within the cave
of his chest was the enlargement of his aorta.
His
aorta was ballooned out, swollen to three times its normal size.
Such a weak, bulging aorta--an aneurysm--could have come only from
syphilis, which he had contracted years or more likely decades before.
This revelation completely transformed our daily encounters with
our cadaver. This was now no longer a mere anatomy textbook yielding
up its slow secrets. No, this was a man, instantly humanized, who
had walked and worked among us and died of love. In some metaphysical
sense, the woman from whom he had contracted the disease was still
there with him on the dissection table, after all those years.
As
Racine wrote in Phèdre, "It is no longer a passion
hidden in my heart; it is Venus herself fastened to her prey."
That
indelible story led me down several paths in medicine. The most
important one was that I should expect to hear such dramatic stories
because medicine is full of epiphanies; medicine is full of stories.
But, unless we listen for them, they will disappear like a dream.
Writing
stops the clock. Keeping a journal helps stop the clock, helps fix
in time those patients who will become, over time, as close as kin
to you in training.
As
far as I can tell, it may well have been a genetic reason that I
began to write. My grandfather, another John Stone, worked between
1875 and 1950 in north Mississippi where he delivered in a small
hamlet, formerly called Stone's Crossroads and later called Treemont,
three thousand babies and where he told us stories--my brother and
I as I sat on his lap--about a rabbit that slid down a hill on one
ear. He took me once to his office. I remember that the smell was
of ether and antiseptics.
Another
thing I remember was that, as I sat where the patients sat and he
sat where the doctors sat, I could see a whole row of display cases
of small bottles with things in them such as gallstones, byproducts
of the doctor's work--cases that were important to him in some way.
One of the little bottles contained a fetus. I spent about twenty
years trying to figure out why he had that fetus. I think I know
now after I wrote the poem called the Bottle, which I am going to
read. It was clearly the product of a miscarriage, but the question
was why, in full view of the patient, would he keep it?
The
poem that came out, as I said, took me about twenty years to write,
although I was not thinking about it the whole time.
The
Bottle
Summers
ago, after the woman
had
moaned and birthed it
onto
little more
than
a kitchen table,
he
sealed it in a bottle
while
the sun bore down
and
the patients waited.
In
that long bath
it
remains a monster
that
couldn't live in air
but
lasts in formalin
its
forehead pressed against
the
glass as though
against
an endless window.
What
magic did he use it for?
What
lesson did it teach him
or
his patient,
frightened
anyway of what
the
doctor might have to say
over
his glasses
and
the fetus
twenty
years old on the shelf
staring
at them both
believable
as any genie.
I think
he kept it there for magic. Nowhere in 2003 is there less of a demand
for magic on the part of the patients. He realized full well that,
with his armamentarium of ten or fifteen drugs that really did something,
he needed all the magic he could get. He needed magic to reassure
himself, for one thing.
That
is my grandfather. I just had a picture sent to me by the magic
of email and it shows him suturing up someone's arm. What a remarkable
man he was. I have great, fond memories of him. I am sad to say
that his office is now torn down, but we did save the desk at which
he worked.
Three years ago I had the opportunity to go to the Middle East.
I went with a group of theology students--about twenty six in all.
There were some people who were older than the theology students,
such as I. Because I was the doctor and because virtually everybody
got sick at one time or another, I began to feel like the plague
doctor. Remember the plague doctor who covered himself with leather,
gloves, this long flowing gown, and something that looked like a
bird head up on top. In the end of that was antiseptic, and that
was supposed to protect the doctor against plague. I began to feel
like that, but I also had another experience that I want to tell
you about after this poem about the plague doctor.
Back
Through Time
Like
the plague doctor
dispensing
the magic
I
move among the victims.
They
open
they
swallow.
Like
him
ideal
only with the here and now
the
stomachs gripe with the blinding nausea
that
may come before or follow.
It
is just as though I, too,
were
wearing the full length leather gown
of
medieval power
but
minus the honorable gloves
the
bird hat
its
coned nose filled with antiseptic
to
protect me now, of course,
but
especially at the hour.
When
I was in the Middle East, we went from Syria to Jordan to Lebanon
down through Mount Sanai and that area of the Middle East, and then
to the holy land itself. I was thinking of my father, in part because
we were so close to Egypt, and in part because he used to sing in
the shower this song:
Go
down, Moses
Way
down in Egypt land.
Tell
'ole Pharaoh, "let my people go."
When
I was a senior in high school, I came home one afternoon in Jackson,
Mississippi, and my father was home from work--distinctly unusual.
He was 45 years old and, at his job at Knocks Glass Bottle Company,
he had experienced chest discomfort. He had come home, and in the
leisurely way we used to treat patients with heart attacks, had
been told by the family doctor that he had a heart attack. He was
sent to Mississippi Baptist Hospital. This was 1954. The therapeutic
technique of the time was to put the patient in a room by himself
so he could rest. He was put in a big, huge plastic oxygen tank
into which oxygen was piped. That was it. You can guess what happened.
On the third hospital day, he had an arrhythmia and died. We were
called to the hospital. It is, of course, a single, dramatic, terrible
event in the life of an 18 year old.
When
I was a cardiology fellow, I decided to go back and ask the doctor
if I could see my father's EKG. It turned out to be an inferior
myocardial infraction, which I suspect all of you know is the best
kind to have, if you have to have one, because it involves a smaller
part of the muscle of the heart than the anterior. It made me wonder
what life would have been like had he been saved from that single
dis-rhythmic moment. And so I wrote this little poem in the Middle
East called "Spiritual."
My
father used to sing
that
refrain in the shower
in
Jackson, Mississippi, in 1954.
The
year he finally got out of Egypt
he
was 45 years old.
He
died before coronary care
before
the defibrillator
before
lidocaine monitors
before
intensive care nurses.
They
put him in an oxygen tent
they
made the diagnosis just for show.
They
hoped the best for him.
We
let him go.
That
was an early story that had a profound effect on me. I remember
going by the hospital on the night before the morning he died. He
said to me, "You know, if you would like to go to medical school,
you can. It's all fixed no matter what happens to me." So that indelible
story is in my mind and was in my mind as I trekked through the
Middle East, a place of such great astonishment and of such great
need.
I want
to read you a short prose piece that I only wrote last night, because
it will lead us into the next section.
It
is Sunday afternoon in the hospital. The patient, an elderly
woman, is sleeping fitfully in her hospital bed. I am sitting
next to her bed, my head resting on the bed rails. Occasionally,
she raises through the gauze of sleep, she rouses through the
chloroform of fatigue, and moans. The past 48 hours--tests,
tests, and more tests--have been hard for both of us. As I rest,
I begin to notice a recurring pattern to her moans. For several
minutes she rests quietly, then begins to moan again, softly
at first then louder. There is a diamond shape to her pain--crescendo,
gradually louder, then decrescendo. It is the old nemesis I
hoped not to see this colicky pain is biliary colic. I know
already that she has pancreatitis and a bag full of gallstones.
I have just observed her as she passed another stone. The matter
is settled. This 94 year old woman will have to have laparoscopic
surgery with a removal of her gall bladder--surgery we hoped
to avoid. This woman, full of pain, is my mother.
My
mother, of course, has probably taught me more than anyone in the
world, but I never expected her to teach me about biliary colic.
Several years ago when she came to see me, it was clear that she
needed some help in the activities of daily living and so we put
her in an assisted care home. In the poem that begins this series,
I want to call it "Serenity Gardens," which is not its real name.
This is about a visit to her several years ago. It is called "Tuesday
at the Assisted Care Home."
- Waking
Up
I
go by Serenity Gardens for a visit. In her room, my mother is
napping. I shake her shoulder. Smiling into her pillow then
at me, she wakes up gently.
"How
are you doing, Moms?"
"Fine,
fine."
"Were
you dreaming?"
"I've
been planning like fury!" she says.
"Planning
what?"
"Oh,
a whole new life."
"And
what will that include, this whole new life?" I ask.
"Oh,
sitting out in the sun more, enjoying life more--that sort of
thing."
"A
new life, eh? Sounds like a good idea for a lot of folks. Maybe
your cousin, Mary Blanche out in Fort Worth would like that
prescription."
"Right.
Yeah, you call up Mary Blanche and tell her that I said to follow
suit."
- Under
the Sun
So,
together we are planning whole new lives--I in the shade, she
in the sun. Then suddenly, the spelling bee group from inside
Serenity Gardens is upon us. They move outside en masse, six
women and one man. She and I are surrounded and outnumbered,
so we join in--I to listen, she to spell. I'd wager she is the
oldest of this group. At first, all of the P words come her
way. She spells with relish, each in turn, easily mowing them
down. Paisley, preference, parsonage, palisade. This woman is
my only mother, now 93, who loves to sit in the sun smiling
out from under her great straw hat and lighting by Vermeer.
If she is not this morning the oldest here, clearly she is the
most beautiful.
Then
the spelling rules change. Now she is to pick a word beginning
with the letter B and spell it. She ponders. "Blaspheme, " she
says finally and spells it. Everyone is suitably impressed,
even startled. The woman next to me says, "your mother is a
great speller, you know? But where do you reckon that she came
up with a word like that?"
"I
have no idea where she got it," I reply. After popsicles, the
party is over. Time for lunch. The group disperses slowly with
chair and cane--not a blasphemer among them, as far as I can
tell.
Then
she and I are alone again together. Both of us now brightly
under the sun in its highest rising. Under her great straw hat
and this lighting by Vermeer, she stretches in the heat. I speak
to her dosing eyes, deep in brim shadow, "you look a lot like
Katherine Hepburn in that hat. In the African Queen, remember?"
Her eyes open.
"You
can say that again." And with a regal smile all her own and
still aiming at a whole new life, she settles back and gathers
unto herself a sun and her son.
One
December day I went by to see her and made a startling discovery.
We, in medicine, are uncovering discoveries all the time. But, it
is not that often that they come from our parents. I felt privileged
to have made this discovery, but it was a time of great concern
because of what was to come with her gall bladder disease.
Let
me tell you about the gall bladder surgery. She had the gall bladder
surgery. She has osteoporosis. I was very concerned about her. She
was so thin. But, the laparoscopic removal of her gall bladder took
about thirty minutes. She went through it easily and came back to
her room. The surgeon followed and gave us the good news. Of course
during the time when she had been in the hospital and she was already
losing ground, she was losing weight and, of course, unbeknownst
to us, had been losing weight before the surgery and before the
diagnosis was made. She had had this for a long time, no doubt,
before I listened to her diamond-shaped moans.
She
had a long way to go. Fortunately they assigned to her case a physical
therapist that made house calls. The physical therapist came to
her bedside three times a week and an OT came the other two days
of the work week. Of course there was pain in what they were doing.
Her hamstrings were tight, as were all the muscles in her legs.
The physical therapist told us that there was going to be some pain.
And there was indeed. This little poem is about that early encounter.
There is a sentence at the beginning that says from John Chardy
the poet, "I think, perhaps, this woman is my child." This is called
From the Flight Deck. My mother and I are sitting outside
Serenity Gardens just reminiscing.
Above
Serenity Gardens
the
sun is a hot, bright disc
noon-high
yellow-white
on crayon-blue paper.
My
mother and I
are
on the deck rambling in childhood
tumbling
in the siv of memory.
Three
weeks after her surgery
she
is still week as water
brittle
with osteoporosis
a
trooper.
She
leans her head back against the wheel chair
her
straw hat tips forward over her face.
Blue
eyed, hatless,
I
improvise against sunburn
folding
the newspaper hat this way and that
to
make a three-cornered one.
It
takes shape in my hands
like
a gift from Napoleon.
Now
we are both hooded
a
pair of senior goblins ready for Halloween.
We
nap in a nest of pumpkins and cornstalks.
Our
heads lull.
Suddenly
looming
out of the blue sky
a
physical therapist appears,
rousing
us from our revelry with a loud voice.
"Whoa,"
she says,
"what
goes on here?"
I
turn my hooded eyes toward her
tip
my newspaper hat.
The
therapist smiles benignly
but
we are not fooled.
We
know why she has come:
to
stretch my mother's tight quads
to
lengthen her thin
contracted
hamstrings.
She
means business.
And,
as we know from her first visit
pain
is part of the business.
She
wants my mother
in
her clutches three times a week
as
scheduled.
Imagine
her surprise, then
when
my mother and I rise
from
the flight deck of Serenity Gardens
moving
aloft together in a dream
of
a winged escape from prison.
We
are flying together
flapping
our wings
looping
through the startled sky.
We
circle above the therapist
now
a tiny dot
who
will have to wait for her appointment.
We
are tempted like Icarus
like
all her children
to
fly straight for the sun.
But,
what matters most now
is
to soar into the blue wild yonder
on
the bird bones of osteoporosis
riding
high and well beyond her reaches.
I am
here to tell you it worked. A few weeks later her strength having
returned, her nutrition having gone in a great tilt, she made an
astonishing trip down the hall, which I record in a poem called,
Processional: A Follow-Up. She had been in a wheelchair for
months.
After
daily sessions on the rack,
My
mother rises from her bed to walk.
Down
the hall we make a kind of train.
My
Mother's first--the engine and the brain.
Next
the therapist, in single file,
Urges
my Mother's feet, all the while
I wheel
an empty chair behind them both,
An
earnest rear guard tucked up close,
Lest
the lady general need to take,
In
the sweep of battle, a sudden seat.
We
make a left and lurch into the dining hall,
Catching
Keith and Yolanda resetting
all
the tenants' places for lunch. Smiling then,
They
begin to clap and the house joins in
To
form a mighty circle of applause
For
my mother who has broken all the laws.
You
seemed, just now, to walk on water or wine
Or,
for that matter, air.
And
she sits down to dine.
How
we take care of the elderly, how we take care of, in fact, our mothers
and fathers, is a measure of how we are doing in medicine. She is
doing well now. She sends her regards.
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